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Note:
The
information provided here is for educational purposes only and it
should never take the place of advice from your personal health
care provider. Be sure to check with your physician.
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Alpha1
Advocacy Alliance
Alpha-1 Canada
Alpha-1
Info: Austrailia
Australian
residents or those with a specific interest in AATD
issues in Australia.
Alpha-1 Info: The Neatherlands
Alpha-1 Info: New Zealand
Support
and advocacy for individuals and families with Alpha1 deficiency
lung & liver
conditions.
Alpha-1 Kids Online
Support Group
Alpha-1 Support UK Under
Repair
Alpha-1 Swedish Homepage/ALFA1 SVERIGE
Alpha-1 Voice
The
sole purpose of Alpha-1VOICE is to speak out for the well-being
of the Alpha-1 Antitrypsin
Deficiency
Disorder community which is continually growing in number.
Alpha
Angels Memorial
Alphabeaters Support group
Genetic
Alliance Organization
American
Association of Cardiovascular and Pulmonary Rehabilitation
For help with patient assistance programs for
prescriptions, go to:
http://www.helpingpatients.org
http://www.needymeds.com
http://www.themedicineprogram.com
Alpha-1
Medline Plus Health Information
American Association for Study of Liver Diseaes
American Liver Foundation
American Lung Association
Band-aids and
Blackboards—For kids and teens coping with chronic illness
Caring Voice Coalition
Comprehensive
help for the needs of patients with serious, chronic illness
Caregiver
Support and Wellness
For
“all caregivers and loved ones of those who are chronically
ill.”
Caregiver Survival Resources
Message
boards for patient and caregivers, “Ask Dr. Caregiver,”
excellent links to
caregiver
resources.
Children’s Liver Association
for Support Services
C.L.A.S.S.—“dedicated
to serving the emotional, educational, and financial needs of families
coping
with childhood liver disease and liver transplantation.”
Children’s Liver Alliance
(CLA)
Lab
tests of Liver Diseases
Liver and Biliary
Disease
Liver Symptoms
Respiratory
System
Understanding
PFTs
LifeNet
Mayo
Eating Better
Second Wind Lung Transplant Association
Lung
transplant chat, patient stories,and more
National Institutes of Health
American Medical Association
National Jewish Medical and
Research
Chronic
PulmonaryDisease
United Network for Organ Sharing
(UNOS)
Organ Procurement and Transplant Network
Transplant Recipient’s
International Org. Inc.
TRIO—Transplantation and organ donation information and resources
for transplant candidates, recipients,
donors and their families.
Emphysema Foundation
for Our Right to Survive (EFFORTS)
National Organization for
Rare Disorders, Inc. (NORD)
The
Journal of the American Medical Association
The Food and Drug Administration
The Internet Drug Index
Well Spouses
Foundation
“provides
emotional support and information to the husbands, wives and partners
of the
chronically
ill and/or disabled.” With message board, chat, newsletter,
and so on.
Alpha-1
by the Doctor’s Doctor
Alpha-1 Reports
Page
Anxiety/Panic
attacks
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