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Note: Readers should always consult their physicians before taking any action (or inaction) which may affect their health or involve decision making.

1. Number of survey results returned total 93 (survey results do not include the 11 pre-transplant returns):
   Post-transplant: 82
   Pre-transplant: 11
   

2. Number that returned to work or school: 47 (57%); number that did not return to work or school: 35 (43%).

1. What was the date of the transplant?
   

   Year	88	90	91	92	93	94	95	96	97	98	99	00	Total
   Number	1	1	5	3	4	3	3	9	9	14	13	17	82

   
   
   
2. What type (e.g., single) of transplant did you have?
   

   Type	Double	Single	Live Lobar	Heart/ Lung	Single or Double Not Indicated
   All	49 (60)	27 (33)	2 (2)	1 (1)	3 (4)
   47 returned to work (%)	32 (68)	13 (28)	1 (2)	1 (2)
   35 didn’t return to work (%)	14 (40)	17 (49)	1 (2)		3 (9)

   
   
   
3. What was your lung illness?
   

   Illness	CF	Alpha	IPF	Emphy	PPH	COPD	LAM	PulmF	Bronch	Sarc	Eisen	Eosin	Sili	Yngs
   Total (%)	22 (27)	13 (16)	11 (13)	7 (9)	7 (9)	5 (6)	4 (5)	4 (5)	3 (4)	2 (2)	1 (1)	1 (1)	1 (1)	1 (1)
   47 returned to work (%)	18 (38)	5 (11)	5 (11)	1 (2)	4 (9)	2 (4)	3 (6)	3 (7)	1 (2)	2 (4)	1 (2)	1 (2)	0 (0)	1 (2)
   35 didn’t return to work (%)	3 (9)	8 (23)	6 (17)	6 (17)	3 (9)	3 (9)	2 (6)	1 (2)	2 (6)	0 (0)	0 (0)	0 (0)	1 (2)	0 (0)

   
   
   
4. What is your present age?
   

   Age	Under 10	10–19	20–29	30–39	40–49	50–59	60–69
   Total (%)	1 (1)	4 (5)	8 (10)	15 (18)	22 (27)	25 (30)	7 (9)
   47 returned to work (%)	n/a	3 (6)	8 (17)	12 (26)	10 (21)	13 (28)	1 (2)
   35 didn’t return to work (%)		1 (3)	1 (3)	3 (9)	12 (34)	12 (34)	6 (17)

   
   
   
5. How many months after your transplant, did you return to work or school?
   

   Months	0	1–6	7–12	13–18	24	30	72
   Returned		22	19	8	2	1	1
   Didn’t return	35
   School	4 (varied months)

   
   
   
6. How many hours a week do you work or attend school?
   

   Hours	6 or less	7–19	20	21–25	30–39	40	40 plus
   Work	2	4	4	4	3	15	7
   Shift work					1 (three 12- hour shifts)
   Didn’t return	35
   Volunteer	3
   School	4 (3–29)

   
   
   
7. If presently working, what field of work?
   

   Field	Number
   Office/Secretary/Library/Data Entry/CPA/Investment	11
   Sales	8
   Medical/Nurse/Radiologist	5
   Fund Raising/Vocational Rehab/Educational Research/Public Relations	4
   Student	4
   Government	3
   Computer Software	3
   Teach/Music to Senior Citizens/Kindergarten Teacher	3
   Volunteer	2
   Work at Home	1
   Massage Therapy	1
   Aerospace	1
   Semi Truck Driver - Corvette Parts	1
   Total	47

   
   
   
8. If you are in school, what grade or college level?
   

   Level	N/A	College	Home School	11th Grade
   Number	78	2	1	1

   
   
   
9. Does your work involve any exposure to the public?
   Number not returned to work:
   

   	Yes	No	Other Employees only	Don’t Work
   Exposure	35	6	6	35

   Comment: “Lots of exposure, especially the ‘little public.’”
   
   
10. If so, approximately what percentage is with the public?
    Number not returned to work: 35
    

    Percent	100	95	85	80	70	60	50	40	30	25	20	15	10	5
    Returned	8	1	2	3	3	1	8	2	2	2	5	2	2	6
    Didn’t Return	35

    
    
    
11. Please list any infections or health problems you have experienced since returning to work (this list of infections includes all 82 respondents answers)
    

    Category	All Respondents	Those Working	Those not Working
    No infections/health problems (%)	28 (34)	15 (32)	21 (60)
    Infections/health problems (%)—types listed below:	54 (66)	32 (68)	14 (40)
    Mild Infection/odd colds/sinus infections	32 (60)
    CMV/Pseudomonas/Aspergillous/RSV/Pneumonia/Rejection/BOS	16 (30)
    Muscle Problems	1 (1.5)
    Renal	1 (1.5)
    Stomach Virus/GI	4 (7.0)

    
    
    
12. What type of precautions do you take at work, school, or home to protect yourself from those persons who may be contagious (e.g., masks, washing hands and so forth)? (This question you had the choice of listing as many precautions you wanted to, so the total number does not equal 82.)
    

    Precaution	Number
    Wash Hands Frequently	5
    Watch/Listen/Avoid Sick People	22
    No Answer	18
    Purell type hand Sanitizers	29
    Avoid Areas with Many People	4
    Mask when Needed—hospital, airplane	16
    Wipe Surfaces with Antibacterial Product	8
    No Food or Drink Sharing	5
    Avoid Touching Public Surfaces (door knobs, handles, rails, elevator buttons, community microwave, coffee urns, refrigerator, pens, pencils)	5
    Not Touch Face or Eyes	4
    Common Sense	4
    Lysol Spray	3
    Avoid Personal Contact with Public	2
    Sit at Edge of Classroom	1
    Use Surgical Gloves when Needed	1
    HEPA Filter	1
    Keep Hydrated	1
    Avoid Smoke	1
    Gargle to Keep Mouth Free of Germs	1
    Have Others Wash Hands Frequently	1
    Open Windows	1

    
    
    
13. What are the reasons for returning to work (financial, health insurance coverage, and so forth)? (This question allowed for listing all the reasons, so there are more than 47 replies.)
    

    Reason	Number
    Enjoyment	31
    Financial	28
    Keep Mind/Body Busy	22
    Insurance	19
    Family Business	1
    Want to help others	8
    Productivity	1
    Socialization	7
    Return this gift some way	4
    Self-esteem	1
    School be with others same age	1
    Achieve Goals	4
    Ambitious	1
    No Answer	29

    Comments:
    “Like sense of belonging, too many years on the couch”; “Keep brain alive . . . instead of isolated at home”; “Purpose in life”; “Enjoy feeling part of the world”; “It’s important to live your life dream”; “My passion”; “Always wanted to be a doctor and experience life on my own.”
    
    
14. With your present work or school, are you able to exercise regularly on a daily or weekly basis?
    Those 47 who have returned to work responded: Yes = 39 (83%); No = 8 (17%)
    Those 35 who did not return to work: Yes = 16 (49%); No = 0 (0%); No Answer = 19 (51%)
    

    	Daily	5x a week	3x a week	2x a week	Weekly	Some	Not Much	Not as much as I should	No Answer
    Working Total 47 (%)	4 (9)	6 (12)	6 (12)	3 (6)	2 (4)	2 (4)	1 (2)	5 (11)	18 (38)
    Not Working Total 35 (%)	5 (14)	2 (6)	4 (11)			1 (3)		2 (6)	19 (51%)

    Note: Two of those not working, but who exercised, didn’t specify an ammount.
    Comments:
    “Not as much as I should, job prevents me from working out”; “Too tired”; “I could, but I don’t”; “Working full time, too tired for exercise”; “Gotten more difficult since returning to work.”
    
    
15. If you were to begin catching infections frequently, would you consider cutting back hours, changing your field of work, or quitting? (This question was answered by both those that have returned to work and those who have not.)
    
    

    	Yes	No	Don’t Know	No Answer	More Careful	Cut Hours
    Number (%)	40 (49)	12 (15)	4 (5)	18 (21)	4 (5)	4 (5)

    Comments:
    “Never quit, change field”; “I would stop anything that threatened my health”; “I would consider my health first”; “My health is priority”; “Yes, quit reluctantly”; “I look at my health as the most important thing in my life”; “No, I couldn’t, have to work.”
    

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Part 2

Updated May 16, 2005