Alpha 2 Alpha: Alpha-1 Antitrypsin Deficiency Post-transplant Bumps in the Road and Rewards, Twelve Parts

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Post-transplant Bumps in the Road and Rewards

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If you’re considering or have had a Lung Transplant then you MIGHT want to know that there WILL be bumps . . . some will be small dips and others moguls, but we think it’s better to be informed than not. Here you’ll find personal missives, suggestions, good things, not-so-good things, GREAT things and bad things. Read on and best wishes!

The purpose is to give both pre- and post-transplant patients an idea about what lies ahead and how best to deal with it. We present both the good and the bad. We definitely believe in giving hope, BUT we also think people absolutely have to know the truth and be prepared for whatever comes. Should you have anything to add, question, critique, and so on, please contact Debby Gerou Ray at gr8now@bigfoot.com.

This discussion is divided into twelve sections. Click on the Part links to navigate through them.

Part 1: Good Things since and about Transplant!

Part 2: Musings/Early Celebration/Pre-transplant: Wait…Getting Ready Physically

Part 3: The Actual Decision-making Process

Part 4: Yeah, It Is Scary! Feels Like You’re All Alone/The “Challenges”

Part 5: Packing for the Transplant—Tips from Lots of Folks

Part 6: Angel Flights

Part 7: The Surgery and Just After/The ICU and Being on the Vent

Part 8: The Not So Good Things/The Many Side Effects/Things that Puzzle

Part 9: Things to Do Before and After/General Tips and Tricks and Opinions

Part 10: The Donor

Part 11: Some Real-life Short Stories

Part 12: Summary

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Updated May 24, 2005